When it comes to food allergies, expert parents are uniquely-positioned educators. They know the tricks of the trade and the ways to the oasis of safety in a culture that has yet to fully embrace supporting children with unique medical needs. Over the years in practice, it’s parent-food-allergy-experts that have taught me the greatest new lessons I now pass on routinely to patients. Marrying the life-threatening nature of food allergy to the concepts of strict avoidance to the use of medication to treat anaphylaxis will never be enough when supporting children, their families, and their schools. The essential advice may be locating the inspiration families need to be staunch, relentless, and tireless advocates for their children. Even when uncomfortable. It’s Food Allergy Awareness week and some just-in-time allergy info has arrived.
This post, this concept, this advocacy, this is Mom-to-Mom health care. Enjoy this post from the ever-brilliant mom and researcher, Susannah Fox (her bio below)
Once a year, I give a high-stakes presentation in front of a single audience member: my son’s teacher. I have 20 minutes to teach her how to save his life.
I need to explain the science of food allergy, list all of his many allergens, accurately describe the symptoms of anaphylactic shock, instill an appropriate sense of urgency and responsibility with one or two frightening stories, but also build her confidence so she does not tune out or give up prematurely. Read full post »
This is a guest blog from Lisa M. Peters, MN, RN-BC (in the video above). Lisa is mom of two children and a clinical nurse specialist for the Pain Medicine Program at Seattle Children’s Hospital. She holds a clinical faculty appointment in the Department of Family and Child Nursing at the University of Washington School Of Nursing. She is board certified in pain management from the American Nurses Credentialing Center and is a Mayday Pain & Society Fellow. Lisa has a passion for improving the lives of children in pain. I’ve learned so much from her already!
Pain is inevitable; suffering is optional. That’s a key message when I partner with parents who bring their kids in for procedures and hear them recount stories of standing by, feeling helpless, as they watch their kids suffer with pain and distress.
It does not have to be that way.
Parents seldom realize the power they have as advocates and as partners with doctors and nurses in managing, and even preventing, their children’s pain. Could that shot at the doctor’s office really be a different experience? Do a few moments of pain really matter in the long run? If I speak up, will they label me and my kid as “troublemakers”?
As a parent, you can make a big difference in your child’s experience with pain. Knowledge is power.
3 Things To Know About Pain:
Poorly treated pain is harmful, both immediately and long term.
Science continues to teach us about the consequences of poorly treated pain on our bodies and minds. There is evidence that it can change how our bodies process pain signals, especially during critical periods of development in childhood. This can lead to highly sensitive areas of our bodies or a generally louder experience of pain. Memories of painful experiences have been shown to shape how we respond; studies show that 10% of the adult population avoids seeking medical care when needed due to fear of needles. Read full post »
This is a guest blog from Dr. Mary Alison Higi. Dr. Higi is a naturopathic physician in her final year of residency at Cascade Natural Medicine specializing in pediatrics under Dr. Candace Aasan. She studied at Bastyr University where she earned her Doctor of Naturopathic Medicine. She emphasizes the importance of the physician’s role in preventative medicine and public health. Dr. Higi has a special interest in implementing Naturopathic Medicine programs for under-served communities.
I’m publishing this post because I think there is significant confusion about naturopathic physicians’ support of vaccines. I’m hoping this sheds a little light. Would love to learn more from you all about your experiences with naturopathic medical care and vaccines. Please leave comments!
I have frequently heard from parents, “You give vaccines? I thought you were a naturopath!” I can only reply, “Vaccination follows three of our most important guiding principles”
1. Premum non Nocere — First do no harm; weigh out risks and benefits and follow the least harmful path.
2. Docere – A physician should be a teacher to her patients.
3. Preventir – Practice preventative medicine.
By providing routine vaccinations to my patients I have the opportunity to help them weigh risks and benefits of vaccine preventable disease versus costly, painful and the often dangerous consequences of preventable infections.
When I counsel and give vaccines I get to teach about disease prevention and public health; I get to help patients prevent some truly life threatening diseases. So yes, vaccines are naturopathic! In that light, following our naturopathic principles, there are a few vaccination myths that I’ve heard so often, I feel compelled to dispel them:
This is a guest post from Liz Scott, mom to Alex, Patrick, Eddie and Joey. She’s looking for support and in doing so she is sharing her story. She talks about instincts and love, commitment and courage. Here’s more on how you may be able to help:
Some of you may be familiar with my place of work, Alex’s Lemonade Stand Foundation, a nonprofit dedicated to finding cures for all kids with cancer, where I am the Co-Executive Director alongside my husband Jay. If you are still reading this, you may be wondering why exactly I’m telling you all of this? The reason is simple, because like your very own Seattle Mama Doc, I too am a mother, and my daughter Alexandra “Alex” Scott battled childhood cancer from before her first birthday until the time of her death at the age of 8 in 2004.
I am hoping that through sharing her story with you, and my part in it, that you will join me in an initiative, The Million Mile Run, this September to raise the profile of National Childhood Cancer Awareness Month. Alex was my second child, born only a few short years after my husband Jay and I welcomed our first child, a son, Patrick. To say that we were experienced parents during Alex’s first year of life would be a gross overstatement, but something I learned quickly was to trust my instincts. Read full post »
This is a guest blog from Karen Ernst. Karen is the mother of three boys and a military wife. She sometimes teaches English and enjoys advocating for and working with children. She is the co-leader of Voices for Vaccines and one of the founders of the Minnesota Childhood Immunization Coalition.
The preschool class party was one of the last hurrahs for my then five year old. The entire family attended, including our ten-day old newborn, whose only interest was nursing. His lack of other interests turned out to be good fortune because another mother-son duo at the party were contagious with chicken pox and began showing symptoms the day after the party. Had the mother held my newborn or the child played with him, the results could have been fatal for our son.
Having immunized my older child, who played with his contagious friend, I was relieved that no one in our home contracted chicken pox and no one passed it on to our new baby.
While I was angry when the mother revealed that she’d purposely left her son unvaccinated against chicken pox, I felt proud that I had chosen well, I had protected both my children, and I had understood and agreed with what public health officials had proposed: that children need the varicella vaccine. I had both done what I was supposed to, and nothing bad happened. So that’s the end of the story, right?
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This is a guest blog from Emily Kramer-Golinkoff. I was lucky enough to meet her about a year ago & even luckier that she asked me to help her make a big impact with her final thesis for her Masters in Bioethics. Her story, insight, and strength are worth your time. She’s hoping to leave a big mark in understanding how to leverage the asset of empowered patients to advance science and healing. She’s working to integrate patient communities more intimately in the health system. Her post is about why she chose to be an empowered patient and it’s fairly clear why she’s attracted an entourage…
Truth be told, belonging to a disease community isn’t my clique of choice. An artist community, a running club, even a yogi enclave sound more appealing. But I’ve learned that when our hands are tied, we’re better off building muscles in our legs than spending all our energy trying to wrangle our hands free.
That’s the philosophy I’ve embraced as a 28-year-old with big eyes, a bright future, and an advanced, incurable and fatal disease called Cystic Fibrosis. Cystic Fibrosis (CF) is a progressive genetic disease that primarily affects the lungs and digestive system. It causes thick mucus to build up in the lungs, leading to life-threatening infections.
My winding path to patient empowerment started as a headstrong, sassy little girl who clashed with my pediatric CF clinic’s authoritative culture. My perpetual questions of “why?” and efforts to integrate my disease into my life were met with disdain and labeled “difficult.”
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This is post from my friend, Anne Gantt. I love this concept and am inspired by the idea of parents pumping iron at the park. I’m hoping we can move this conversation forward. Please share ideas from your own neighborhoods in comments.
As a stay-at-home mom, I spend a ton of time at our neighborhood park while my 2 ½ and 4 year-old children zip down slides, scramble over the jungle gym, or chase each other in the woodchips. While they’re running around like little olympic athletes, I mostly just stand there doing nothing. A lot of nothing. Sound familiar?
That’s originally why I daydreamed about putting fitness equipment for adults in our park. I’d love to get a little exercise without having to resort to taking a turn on the monkey bars. The interesting thing is that installing adult fitness equipment will improve the park…for kids. This truly can be a win-win.
The park in question is here in Seattle– University Playground— it has a big grassy field, tennis courts, and beautiful new equipment for kids. It also has one of the very few public restrooms in the whole neighborhood–thus attracting a crowd. It sits in a tenuous location, one block from Interstate-5 and smack in the University District, which means the park sees a lot of illicit activity. Even worse, the illicit (I’m talking drug sales, etc) activity tends to happen in the section of the park right next to the playground.
Believe it or not, I’ve picked up more than a couple of used needles out of the woodchips myself.
Our park’s unsavory elements definitely scare some people off. I recently talked with a neighbor who refuses to take his 4-year old grandson to the park out of a concern for safety. This, even though their living room window looks right out onto the playground.
Something had to change. Urban dwelling can be better than this. Read full post »
This is a guest post from Lara Okoloko, LICSW, a clinical social worker who lives in Seattle area with her husband and two young children. She is co-founder and clinical director of Center for Advanced Recovery Solutions (CARES). CARES provides respectful, solution focused counseling to the parents of addicted young people. More about their services can be found at www.caresnw.com
Well, it’s been about a month since marijuana became legal in Washington State and we haven’t gone to pot yet, although the national news circuits may suggest so… But all joking aside, many are wondering what the impact will be for children in our state. Will marijuana use increase because it will be perceived as no big deal? Or will rates of use go down because the taboo factor will be erased?
As a therapist working with parents of teens and young adults, I know that parents already face an uphill battle convincing their sons and daughters that marijuana use poses risks to their health and well-being. My hunch is that legalizing marijuana will only increase the challenge.
Pot isn’t a rarity in high school. According to 2010 data from the Washington State Healthy Youth Survey, one in five 10th graders have smoked pot in the last month. By the end of high school, almost half of all students have at least tried it. This makes marijuana the second most used drug after alcohol. Surveys of drug use show a clear relationship between the perception of risk and the likelihood of drug use. The 2010 National Survey on Drug Use and Health found that only 1% of youth who saw great risk in smoking marijuana had used it within the last month, compared with 10% percent of youths who saw moderate, slight, or no risk. I don’t think it’s a stretch to say that legalizing marijuana will add to the perception that it is harmless, which will in turn increase the number of teens who use it.
One of the biggest mistakes parents to teens make is to believe that they no longer have influence on their kids
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Every week in clinic families ask me about strategies to help with children who awake before the sun is up. We all thrive with improved, uninterupted, prolonged periods of sleep at night. Particularly on those Saturdays where an extra hour or two of sleep can be life-sustaining for exhausted parents to toddlers and preschoolers. Because of our boys’ early schedules, late last year Santa conveniently dropped off an incredible tool: a toddler teaching clock. The clock has helped our 3 year old know when 7 o’clock rolls around. And we’ve made a deal with boys for 2012: no leaving their bedroom until 7 appears on the screen. And so far, it’s working–we’re batting about .900. Learning to play quietly on their own in the early morning has been a great benefit, too.
Toddlers and preschoolers between 1 and 3 years of age need about 11 to 13 hours of total sleep within 24 hours (night time and nap combined). Sometimes no matter what time bedtime starts, early morning awakenings continue to happen. As many parents learn, moving bedtime later doesn’t always shift the time a child awakens in the morning. But with time, shifts in schedules sometimes improve that Saturday morning sleep…
Dr Craig Canapari, a pediatric pulmonologist and sleep expert in Boston helps explain some reasons for these uber-early wake-ups and what we can do about it:
Why does my toddler get up so early in the morning?
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There is a lot of writing online about how to get your baby to sleep through the night during infancy but not as much expertise to help those of us with toddlers and preschoolers who wake a number of times. Between age 2 and 3 when O was released from crib jail and moved to a big bed, he’d come to find me a couple of times a night. I’d often awake (and startle) to find him standing next to my bed! I tried many things to improve his opportunity for a full night’s sleep yet for those kids who never quite figure out that sleeping through the night starts around 7 or 8pm and ends with the sun coming up around 7am, we want to help. Recent data shows that 1 in 5 infants who have trouble sleeping may continue to have challenges during the toddler years. Clearly challenges with sleep that span multiple years affect many of us.
I turned to a pediatric sleep expert for help. Dr Craig Canapari is a doctor I met on Twitter (of all places) who answered questions surrounding sleep challenges for toddlers. Dr Canapari is a father to 2, a pediatric pulmonologist & sleep expert, and is thinking of starting a blog! He told me that when he was a kid he, “definitely did have problems falling asleep sometimes,” so not only is he an expert, he’s experienced! Check out his responses here and leave comments and questions — I’ll get him back on the blog to respond as needed.
Why does my toddler wake up at night?
Every parents has experienced the dreaded 2 AM call. You hear your little one stirring on the monitor. Either you wait, fingers crossed, to see if they go back to sleep and they don’t, or you run in there as fast as you can to stuff the pacifier in their mouth before they really wake up. Most babies are capable of sustained sleep (6-8 hours in a row) at night by age six months. If you are nursing your child, it may take them a bit longer to achieve this. I think that it is reasonable that every child should sleep through the night most nights by 9-12 months of age. Now, every child wakes up sometimes at night. I view the awakenings as a problem if they are more than a few minutes in duration, occurring multiple times at night, or resulting in significant daytime irritability for either the child or the parents.
If your child is having problematic nocturnal awakenings, there are a few possible causes: Read full post »