When it comes to food allergies, expert parents are uniquely-positioned educators. They know the tricks of the trade and the ways to the oasis of safety in a culture that has yet to fully embrace supporting children with unique medical needs. Over the years in practice, it’s parent-food-allergy-experts that have taught me the greatest new lessons I now pass on routinely to patients. Marrying the life-threatening nature of food allergy to the concepts of strict avoidance to the use of medication to treat anaphylaxis will never be enough when supporting children, their families, and their schools. The essential advice may be locating the inspiration families need to be staunch, relentless, and tireless advocates for their children. Even when uncomfortable. It’s Food Allergy Awareness week and some just-in-time allergy info has arrived.
This post, this concept, this advocacy, this is Mom-to-Mom health care. Enjoy this post from the ever-brilliant mom and researcher, Susannah Fox (her bio below)
Once a year, I give a high-stakes presentation in front of a single audience member: my son’s teacher. I have 20 minutes to teach her how to save his life.
I need to explain the science of food allergy, list all of his many allergens, accurately describe the symptoms of anaphylactic shock, instill an appropriate sense of urgency and responsibility with one or two frightening stories, but also build her confidence so she does not tune out or give up prematurely. Read full post »